Estrés percibido en madres mexicanas de niños con necesidades especiales: un estudio etnográfico

Perceived stress among mexican mothers of children with special needs: an ethnographic study

Estresse percebido em mães mexicanas de crianças com necessidades especiais: um estudo etnográfico

Palabras clave: Estrés, Agotamiento psicológico, Niños con discapacidad, Madres cuidadoras, Etnografía, Investigación cualitativa, México
Key-words: Stress, Psychological exhaustion, Children with discapacities, Healthcare mothers, Ethnography, Qualitative research, México
Palavras chave: Estresse, Exaustão psicológica, Crianças com deficiência, Mães cuidadoras, Etnografia, Pesquisa qualitativa, México

Resumen

Abstract

Resumo

Bibliografía

World Health Organization. Disability and Health. Geneva: WHO; 2020. https://bit.ly/3gfCIEq
López IM, Valenzuela GL. Niños y adolescentes con necesidades educativas especiales. Rev. méd. Clín Las Condes. 2015; 26(1): 42-51. https://doi.org/10.1016/j.rmclc.2015.02.004
Biblioteca de Publicaciones Oficiales del Gobierno de la República. Diagnóstico sobre la situación de las personas con discapacidad en México. México: SEDESOL; 2016. https://bit.ly/3CDNz4i
Barrera-Ortiz L, Sánchez-Herrera B, Carrillo-González GM. La carga del cuidado en cuidadores de niños con enfermedad crónica. Rev Cubana Enfermer. 2013; 29(1): 39-47. https://bit.ly/3yPDhMx
Giaconi-Moris C, Pedrero-Sanhueza Z, San Martín-Peñailillo P. La discapacidad: percepciones de cuidadores de niños, niñas y jóvenes en situación de discapacidad. Psicoperspectivas. 2017; 16(1): 55-66. https://bit.ly/3fMADzq
Lima-Rodríguez JS, Baena-Ariza MT, Domínguez-Sánchez I, Lima-Serrano M. Intellectual disability in children and teenagers: Influence on family and family health. Systematic review. Enferm. clín. 2018; 28(2): 89-102. https://doi.org/10.1016/j.enfcle.2017.10.007
Gérain P, Zech E. Does informal caregiving lead to parental burnout? Comparing parents having (or not) children with mental and physical issues. Front Psychol. 2018; 9(884): 1-10. https://doi.org/10.3389/fpsyg.2018.00884
Gómez-Ramírez E, Calvo-Soto AP, Dosman BT, Ángulo MÁ. Sobrecarga del cuidado y morbilidad sentida en cuidadores de niños con discapacidad. Duazary. 2019; 16(1): 67-78. http://dx.doi.org/10.21676/2389783X.2508
Arias-Reyes C, Muñoz-Quezada MT. Calidad de vida y sobrecarga en cuidadores de escolares con discapacidad intelectual. Interdisciplinaria. 2019; 36(1): 257-72. https://doi.org/10.16888/interd.36.1.17
Ruiz-Robledillo N, Moya-Albiol L. El cuidado informal: una visión actual. REME. 2012; 1: 22-30. https://bit.ly/3yE2Ob9
McConnell D, Savage A. Stress and resilience among families caring for children with intellectual disability: Expanding the research agenda. Curr Dev Disord Rep. 2015; 2:100-9. https://doi.org/10.1007/s40474-015-0040-z
Jess M, Totsika V, Hastings RP. Maternal stress and the functions of positivity in mothers of children with intellectual disability. J Child Fam Stud. 2018; 27(11): 3753-63. https://doi.org/10.1007/s10826-018-1186-1
Hsiao YJ. Parental stress in families of children with disabilities. Interv Sch Clin. 2017; 53(4): 1-5. https://doi.org/10.1177/1053451217712956
Feizi A, Najmi B, Salesi A, Chorami M, Hoveidafar R. Parenting stress among mothers of children with different physical, mental, and psychological problems. J Res Med Sci. 2014;19(2): 145-52. https://bit.ly/3lOVvdh
Cohen SA, Cook S, Kelley L, Sando T, Bell AE. Psychosocial factors of caregiver burden in child caregivers: Results from the new national study of caregiving. Health Qual Life Outcomes. 2015; 13(1): 1-6. https://doi.org/10.1186/s12955-015-0317-2
American Psychological Association. Resolution on family caregivers. Washington, D.C.: APA; 2011. https://bit.ly/3fP6hfy
Olagundoye O, Alugo M. Caregiving and the family. In: Mollaoğlu M. (Ed.). Caregiving and Home Care. London: IntechOpen; 2018. https://doi.org/10.5772/intechopen.72627
American Psychological Association. Parents and caregivers are essential to children’s healthy development. Washington, D.C.: APA; 2009. https://bit.ly/3xzLHpx
Cantero-Garlito PA, Moruno-Miralles P, Flores-Martos JA. Mothers who take care of children with disabilities in rural areas of a spanish region. Int J Environ Res Public Health. 2020; 17(8): 1-13. https://doi.org/10.3390/ijerph17082920
Khanlou N, Mustafa N, Vazquez LM, Davidson D, Yoshida K. Mothering children with developmental disabilities: A critical perspective on health promotion. Health Care Women Int. 2017; 38(6): 613-34. https://doi.org/10.1080/07399332.2017.1296841
Zulfia R, Allenidekania A. Mother’s experience in taking care of children with special needs: A literature review. Indones. J. Disabil. Stud. 2020; 7(1); 8-18. http://dx.doi.org/10.21776/ub.ijds.2019.007.01.2
Tsai PF. A middle-range theory of caregiver stress. Nurs Sci Q. 2003; 16(2): 137-45. https://doi.org/10.1177/0894318403251789
Dartmouth undergraduate journal of science. The physiology of stress: Cortisol and the hypothalamic-pituitary-adrenal axis. Dartm. undergrad. j. sci. 2011. https://bit.ly/3yHVrQ4
Yaribeygi H, Panahi Y, Sahraei H, Johnston TP, Sahebkar A. The impact of stress on body function: A review. EXCLI J. 2017; 16: 1057-72. https://doi.org/10.17179/excli2017-480
Raile-Alligood M, Marriner-Tomey A. Modelos y teorías en enfermería. 7th ed. Barcelona: Elsevier; 2011.
Cruz EV, Higginbottom G. The use of focused ethnography in nursing research. Nurse Res. 2013; 20(4): 36-43. https://doi.org/10.7748/nr2013.03.20.4.36.e305
Wall S. Focused ethnography: A methodological adaptation for social research in emerging contexts. Forum Qual Soc Res. 2015; 16(1): 1-15. https://bit.ly/3jIaUtf
Saunders B, Sim J, Kingstone T, Baker S, Waterfield J, Bartlam B, et al. Saturation in qualitative research: Exploring its conceptualization and operationalization. Qual Quant. 2018; 52(4): 1893-907. https://doi.org/10.1007/s11135-017-0574-8
Phillippi J, Lauderdale J. A guide to field notes for qualitative research: Context and conversation. Qual Health Res. 2018; 28(3): 381-8. https://doi.org/10.1177/1049732317697102
Mieles-Barrera MD, Tonon G, Alvarado-Salgado SV, Investigación cualitativa: el análisis temático para el tratamiento de la información desde el enfoque de la fenomenología social. univ. humanist. 2012; (74): 195-225. https://bit.ly/3CTah90
Hannes K. Critical appraisal of qualitative research. In: Noyes J, Booth A, Hannes K, Harden A, Harris J, Lewin S, et al. Supplementary guidance for inclusion of qualitative research in Cochrane systematic reviews of interventions. Cochrane Collaboration Qualitative Methods; 2011. https://bit.ly/3xJ9Hqh
Palamaro-Munsell E, Kilmer RP, Cook JR, Reeve CL. The effects of caregiver social connections on caregiver, child, and family well-being. Am J Orthopsychiatry. 2012; 82(1): 137-45. https://doi.apa.org/doi/10.1111/j.1939-0025.2011.01129.x
Hartley SL, Seltzer MM, Barker ET, Greenberg JS. Marital quality and families of children with developmental disabilities. Int Rev Res Dev Disabil. 2011; (41): 1-29. https://doi.org/10.1016/b978-0-12-386495-6.00001-1
Osorio M. Repercusiones biopsicosociales en los padres que tienen un hijo con hemofilia. Rev. investig psicol. 2016; 19(2): 111-21. https://doi.org/10.15381/rinvp.v19i2.12893
González-Castro U, Reyes-Luna AG. Algunos aspectos del proceso que viven los cuidadores primarios de un enfermo crónico-degenerativo. REPI. 2012; 15(2): 636-61. https://bit.ly/37AreXc
Taset-Álvarez Y. Estrés psicológico en las cuidadoras familiares de ancianos con demencia vascular. Rev. Chil. Neuropsicol. 2017; 12(2): 1-7. https://bit.ly/3iGahB1
Fernández-Sánchez H, Enríquez-Hernández CB, Sidani S, Hernández-Osorio C, Castellanos-Contreras E, Salazar-Mendoza J. Dance intervention for mexican family caregivers of children with developmental disability: A pilot study. J Transcult Nurs. 2020; 31(1): 38-44. https://doi.org/10.1177/1043659619838027
Kulkarni P, Kulkarni P, Ghooi R, Bhatwadekar M, Thatte N, Anavkar V. Stress among care givers: The impact of nursing a relative with cancer. Indian J Palliat Care. 2014; 20(1): 31-9. https://doi.org/10.4103/0973-1075.125554
Pilapil M, Coletti DJ, Rabey C, DeLaet D. Caring for the caregiver: Supporting families of youth with special health care needs. Curr Probl Pediatr Adolesc Health Care. 2017; 47(8): 190-9. https://doi.org/10.1016/j.cppeds.2017.07.003

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1.
Fernández-Sánchez, H.; Enríquez-Hernández, C.B.; Castellanos-Contreras, E.; Martínez-Jiménez, L. Estrés percibido en madres mexicanas de niños con necesidades especiales: un estudio etnográfico. Enfermería Universitaria. 2021; 18(2): 5-8. Disponible en: http://ciberindex.com/c/reu/4825reu [acceso: 06/10/2022]
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