Cuidadores familiares de pessoas com demência: Tradução, adaptação e validação da Escala de Limites Ambíguos

Luciana Andreia Costa Sousa; Célia Maria Abreu de Freitas; João Paulo de Almeida Tavares

Luciana Andreia Costa Sousa Universidade de Aveiro ( Aveiro, Portugal) https://orcid.org/0000-0003-0191-6363
Célia Maria Abreu de Freitas Universidade de Aveiro ( Aveiro, Portugal) https://orcid.org/0000-0002-5515-3296
João Paulo de Almeida Tavares Universidade de Aveiro ( Aveiro, Portugal) https://orcid.org/0000-0003-3027-7978

Palabras clave: Luto, Pérdida, Anciano, Demencia, Cuidador familiar

Key-words: Bereavement, Older adult, Dementia, Family caregiver

Palavras chave: Luto, Pessoa idosa, Demência, Cuidador familiar

Resumen

Marco contextual: El cuidado de personas con demencia (PcD) genera estrés entre los cuidadores familiares (CF). Una de las situaciones que generan este estrés es la pérdida ambigua (PA).
Objetivos: Traducir, adaptar y validar la Escala de Límites Ambiguos (ELA) al portugués europeo y determinar las características psicométricas de la ELA.
Metodología: Estudio metodológico basado en una muestra de 88 CF de PcD. La consistencia interna (CI) se evaluó mediante el coeficiente omega de McDonald (), la validez de constructo mediante el análisis factorial exploratorio (AFE) y la validez de criterio mediante la Escala de Percepción del Estrés (EPS).
Resultados: La ELA presentó una validez de contenido excelente. El AFE determinó un modelo de dos factores, que explican el 44% de la varianza,  de 0,72. Los CF que residen con PcD presentan mayor PA (t = 2,823, p < 0,01). Correlación significativa positiva y moderada entre la ELA y la EPS (rs = 0,578, p < 0,01).
Conclusión: La ELA es un instrumento con propiedades psicométricas de CI y validez aceptables para la evaluación de la PA

Abstract

Background: Caring for people with dementia generates stress among family caregivers. One of these stressor events is ambiguous loss.
Objectives: To translate, adapt, and validate the Boundary Ambiguity Scale (BAS) into European Portuguese and assess its psychometric properties.
Methodology: Methodological study with a sample of 88 family caregivers of people with dementia. Internal consistency was assessed using McDonald’s omega coefficient (). Construct validity was assessed through exploratory factor analysis (EFA) and criterion validity through the Perceived Stress Scale (PSS).
Results: The BAS showed excellent content validity. The EFA revealed a two-factor model, explaining 44% of variance, and a  of 0.72. Family caregivers who live with people with dementia had greater ambiguous loss (t = 2.823, p < 0.01). A statistically significant moderate positive correlation was found between the BAS and the PSS (rs = 0.578, p < 0.01).
Conclusion: The BAS has acceptable validity and internal consistency for assessing ambiguous loss

Resumo

Enquadramento: Cuidar de pessoas com demência (PcD) é gerador de stresse entre cuidadores familiares (CF). Uma das situações geradoras desse stresse é a perda ambígua (PA).
Objetivos: Traduzir, adaptar e validar a Escala de Limites Ambíguos (ELA) para português europeu e determinar as caraterísticas psicométricas da ELA.
Metodologia: Estudo metodológico a partir de uma amostra de 88 CF de PcD. A consistência interna (CI) avaliada com o Coeficiente de Ômega de McDonald (), a validade de constructo através da análise fatorial exploratória (AFE) e a validade de critério com a Escala de Perceção de Stresse (EPS).
Resultados: A ELA apresentou validade conteúdo excelente. A AFE determinou um modelo de dois fatores, explicando 44% da variância,  de 0,72. Os CF que residem com a PcD apresentam maior PA (t = 2,823, p < 0,01). Correlação significativa positiva e moderada entre a ELA e a EPS (rs = 0,578, p < 0,01).
Conclusão: A ELA é um instrumento com propriedade psicométrica de CI e validade aceitáveis para a avaliação da PA

Bibliografía

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Cuidadores familiares de pessoas com demência: Tradução, adaptação e validação da Escala de Limites Ambíguos

Family caregivers of people with dementia: Translation, adaptation, and validation of the Boundary Ambiguity Scale

Cuidadores familiares de personas con demencia: Traducción, adaptación y validación de la Escala de Límites Ambiguos

Resumen

Abstract

Resumo

Bibliografía