Necessidades De Informações Das Famílias Sobre Saúde/Doença Dos Prematuros Em Unidade De Terapia Intensiva Neonatal

Information Needs Of Families On The Health/Disease Of Preterm Infants In A Neonatal Intensive Care Unit

Necesidades De Información De Las Familias Sobre Salud/Enfermedad De Los Prematuros En Unidad De Terapia Intensiva Neonatal

  • Vanessa Ferreira de Lima Universidade Federal do Paraná (Curitiba, Brasil)
  • Verônica de Azevedo Mazza Universidade Federal do Paraná (Curitiba, Brasil)
Palabras clave: Familia, Recien nacido prematuro, Unidades de Cuidado Intensivo Neonatal, Información de salud al consumidor, Internet
Key-words: Family, Infant, premature, Intensive Care Units, Neonatal, Consumer health information, internet
Palavras chave: Família, Recém-nascido prematuro, Unidades de Terapia Intensiva Neonatal, Informação de saúde ao consumidor, Internet

Resumen

Abstract

Resumo

Bibliografía

1. World Health Organization. Preterm Birth [Internet]. Genebra;2016 [cited 2016 Oct 16]. Disponível em: http://www.who.int/mediacentre/factsheets/fs363/en/ 2. Costa R, Padilha MI. Saberes e práticas no cuidado ao recém-nascido em terapia intensiva em Florianópolis (década de 1980). Esc Anna Nery [Internet]. 2012 [cited 2016 Oct 10];16(2):247-54. Disponível em: http://eean.edu.br/detalhe_artigo.asp?id=749
3. Woodward LJ, Bora S, Clarck CAC, Montgomery-Hönger A, Pritchard VE, Spencer C, et al. Very preterm birth: maternal experiences of Neonatal Intensive Care Environment. J Perinatol [Internet]. 2014 [cited 2016 Oct 15];34(7):555-61. Disponível em: https://www.nature.com/jp/journal/v34/n7/ pdf/jp201443a.pdf
4. Ramezani T, Shirazi ZH, Sarvestani RS, Moattari M. Family-centered care in neonatal intensive care unit: a concept analysis. Int J Community Based Nurs Midwifery [Internet]. 2014 [cited 2017 Feb 10];2(4):268-78. Disponível em: http://ijcbnm.sums.ac.ir/index.php/ijcbnm/article/view/146/60
5. Maria A, Dasgupta R. Family-centered care for sick newborns: a thumbnail view. Indian J Community Med [Internet]. 2016 [cited 2017 Feb 14];41(1):11-5. Disponível em: https://doi.org/10.4103/0970- 0218.170957
6. Maia JMA, Da Silva LB, Ferrari EDAS. A relação da família com crianças hospitalizadas na Unidade de Terapia Intensiva Neonatal com a equipe de enfermagem. Rev Enferm Contemp [Internet]. 2014 [cited 2017 Feb 23];3(2):154-64. Disponível em: https://doi.org/10.17267/2317-3378rec.v3i2.336
7. Abreu FCP, Marski BSL, Custódio N, Carvalho SC, Wernet M. Breastfeeding preterm infants at home. Texto Contexto Enferm [Internet]. 2015 [cited 2016 Nov 24];24(4):968-75. Disponível em: https://doi.org/10.1590/0104-0707201500000300014
8. Hall SL, Cross J, Selix NW, Patterson C, Segre L, Chuffo-Siewert R, et al. Recommendations for enhancing psychosocial support of NICU parents through staff education and support. J Perinatol [Internet]. 2015 [cited 2016 Oct 14];35(Suppl 1):29-36. Disponível em: https://www.nature.com/ jp/journal/v35/n1s/pdf/jp2015143a.pdf
9. Frello AT, Carraro TE. Enfermagem e a relação com as mães de neonatos em Unidade de Terapia Intensiva Neonatal. Rev Bras Enferm [Internet]. 2012 [cited 2016 Oct 24];65(3):514-521. Disponível em: https://doi.org/10.1590/S0034-71672012000300018
10. Oliveira K, Veronez M, Higarashi IH, Corrêa DAM. Vivências de familiares no processo de nascimento e internação de seus filhos em UTI Neonatal. Esc Anna Nery [Internet]. 2013 [cited 2017 May 17];17(1):46-53. Disponível em: https://doi.org/10.1590/S1414-81452013000100007
11. Bianco A, Zucco R, Nobile CGA, Pileggi C, Pavia M. Parents Seeking Health-Related Information on the Internet: Cross-Sectional Study. J Med Internet Res [Internet]. 2013 [cited 2017 Apr 30];15(9):e204. Disponível em: http://www.jmir.org/2013/9/e204/
12. Walsh AM, Hyde MK, Hamilton K, White KM. Predictive modelling: parents’ decision making to use online child health information to increase their understanding and/or diagnose or treat their child’s health. BMC Med Inform Decis Mak [Internet]. 2012 [cited 2016 Nov 17];12(144):1-10. Disponível em: https://bmcmedinformdecismak.biomedcentral.com/articles/10.1186/1472-6947-12-144
13. Gundersen T. “One wants to know what a chromosome is”: the internet as a coping resource when adjusting to life parenting a child with a rare genetic disorder. Sociol Health Illn [Internet]. 2011 [cited 2016 Set 28];33(1):81-95. Disponível em: http://onlinelibrary.wiley.com/doi/10.1111/j.1467- 9566.2010.01277.x/epdf
14. Creswell JW. Projeto de Pesquisa: métodos qualitativo, quantitativo e misto. 3ª ed. Porto Alegre (RS): Artmed;2010.
15. Camargo BV, Justo AM. Tutorial para uso do software IRAMUTEQ [Internet]. Florianópolis (SC): Universidade Federal de Santa Catarina, Laboratório de Psicologia Social da Comunicação e Cognição;2016 [cited 2016 Oct 22]. Disponível em: http://www.iramuteq.org/documentation/ fichiers/Tutorial%20IRaMuTeQ%20em%20portugues_17.03.2016.pdf
16. Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care [Internet]. 2007 [cited 2016 Nov 02];19(6):349-57. Disponível em: https://academic.oup.com/intqhc/article/19/6/349/1791966/ Consolidated-criteria-for-reporting-qualitative?searchresult=1
17. Balbino FS, Meschini GFG, Balieiro MMFG, Mandetta MA. Percepcao do Cuidado Centrado na Familia em Unidade Neonatal. Rev Enferm UFSM [Internet]. 2016 [cited 2017 Apr 28];6(1):84-92. Disponivel em: https://doi.org/10.5902/2179769216340
18. Ribeiro FSP, Santos MH, Sousa FGM, Santana EEC, Araujo SFC, Viegas CGC, et al. Descrevendo necessidades de familiares de criancas internadas em unidade de terapia intensiva neonatal. Enferm Foco [Internet]. 2012 [cited 2017 Feb 04];3(4):186-9. Disponivel em: https://doi.org/10.21675/2357- 707X.2012.v3.n4.381
19. Fernandes JIS, Reis AT, Silva CV, Silva AP. Motherly challenges when facing neonatal phototherapy treatment: a descriptive study. Online Braz J Nurs [Internet]. 2016 [cited 2016 Oct 10];15(2):188- 195. Disponivel em: http://www.objnursing.uff.br/index.php/nursing/article/view/5348/pdf_1
20. Krzych .J, Ratajczyk D. Awareness of the patientsf rights by subjects on admission to a tertiary university hospital in Poland. J Forensic Leg Med [Internet]. 2013 [cited 2016 Nov 10];20(7):902- 5. Disponivel em: http://www.jflmjournal.org/article/S1752-928X(13)00168-6/pdf
21. Jilka SR, Callahan R, Sevdalis N, Mayer EK, Darzi A. Review gNothing aboct me withoct meh: an interpretative review of patient accessible electronic health records. J Med Internet Res [Internet]. 2015 [cited 2016 Oct 29];17(6):e161. Disponivel em: http://www.jmir.org/article/viewFile/ jmir_v17i6e161/2
22. Pimentel EDC, Luz GS, Pelloso SM, Carvalho MDB. Using the internet to exchange information and experience on cystic fibrosis. Invest Educ Enferm [Internet]. 2013 [cited 2016 Nov 17];31(3):457-63. Disponivel em: http://aprendeenlinea.udea.edu.co/revistas/index.php/iee/article/view/17506/15090
23. Moreland J, French TL, Cumming GP. The prevalence of online health information seeking among patients in Scotland: A cross-sectional exploratory study. JMIR Res Protoc [Internet]. 2015 [cited 2016 Nov 18];4(3):e85. Disponivel em: https://doi.org/10.2196/resprot.4010
24. Moretti FA, Oliveira VE, Silva EMK. Access to health information on the internet: a public health issue? Rev Ass Med Bras [Internet]. 2012 [cited 2016 Oct 30];58(6):650-8. Disponivel em: http:// www.scielo.br/pdf/ramb/v58n6/en_v58n6a08.pdf
25. Coelho EQ, Coelho AQ, Cardoso JED. Does the medical information currently available on the Internet affect the physician-patient relationship? Rev Bioet [Internet]. 2013 [cited 2017 Apr 22];21(1):142-9. Disponivel em: http://revistabioetica.cfm.org.br/index.php/revista_bioetica/article/ view/728/889
26. Pehora C, Gajaria N, Stocte M, Fracassa S, Serebale-OfSullivan R, Matava CT. Are parents getting it right? a survey of parentsf internet use for childrenfs health care information. Interact J Med Res [Internet]. 2015 [cited 2016 Oct 14];4(2):e12. Disponivel em: https://www.i-jmr.org/ article/viewFile/ijmr_v4i2e12/2
27. Sayakhot P, Carolan-Olah M. Internet use by pregnant women seeking pregnancy-related information: a systematic review. BMC Pregnancy Childbirth [Internet]. 2016 [cited 2016 Nov 01];16(65):1-10. Disponivel em: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4526953/
28. Sebelefsky C, Voitl J, Karner D, Klein F, Voitl P, et al. Internet use of parents before attending a general pediatric octpatient clinic: does it change their information level and assessment of acute diseases? BMC Pediatr [Internet]. 2016 [cited 2016 Nov 03];16(1):129. Disponivel em: https://doi. org/10.1186/s12887-016-0677-8
29. Sousa FCP, Montenegro LC, Goveia VR, Correa AR, Rocha PK, Manzo BF. Family participation in patient safety in neonatal units from the nursing perspective. Texto Contexto Enferm [Internet]. 2017 [cited 2017 Nov 10];26(3):e1180016. Disponivel em: http://www.scielo.br/pdf/tce/v26n3/0104- 0707-tce-26-03-e1180016.pdf
30. Schmidt KT, Bessa JB, Rodrigues BC, Arenas MM, Corrêa DAM, Higarashi IH. Premature newborns and hospital discharge: an integrative review on nursing performance. Rev Rene [Internet]. 2011 [cited 2017 Nov 12];12(4):849-58. Disponível em: http://www.periodicos.ufc.br/ rene/article/download/4356/3338
31. Reis CCA, Sena ELS, Fernandes MH. Humanization care in intensive care units: integrative review. J Res Fundam Care Online [Internet]. 2016 [cited 2016 Oct 29];8(2):4212-22. Disponível em: http://www.seer.unirio.br/index.php/cuidadofundamental/article/view/3983/pdf_1859
32. Garfield CF, Lee YS, Kim HN, Rutsohn J, Kahn JY, Mustanski B, Mohr DC. Supporting parents of premature infants transitioning from the NICU to home: A pilot randomized control trial of a smartphone application. Internet Interv [Internet]. 2016 [cited 2016 Nov 18];4:131-7. Disponível em: https://doi.org/10.1016/j.invent.2016.05.004
33. Lupton D. The use and value of digital media for information aboct pregnancy and early motherhood: a focus group study. BMC Pregnancy Childbirth [Internet]. 2016 [cited 2016 Nov 02];16(1):171. Disponível em: https://doi.org/10.1186/s12884-016-0971-3
34. Moorhead AS, Hazlett DE, Harrison L, Carroll JK, Irwin A, Hoving C. A new dimension of health care: systematic review of the uses, benefits, and limitations of social media for health communication. J Med Internet Res [Internet]. 2013 [cited 2016 Nov 12];15(4):e85. Disponível em: http://www.jmir. org/article/viewFile/jmir_v15i4e85/2
35. Van Der Gugten AC, Leeuw RJRJ, Verheij TJM, Van Der Ent CK. E-health and health care behaviour of parents of young children: a qualitative study. Scand J Prim Health Care [Internet]. 2016 [cited 2016 Nov 02];34(2):135-2. Disponível em: http://www.tandfonline.com/doi/full/10.31 09/02813432.2016.1160627
36. Niela-Vilén H, Axelin A, Salanterä S, Melender HL. Internet-based peer support for parents: A systematic integrative review. Int J Nurs Stud [Internet]. 2014 [cited 2017 Apr 10];51(11):1524-37. Disponível em: https://doi.org/10.1016/j.ijnurstu.2014.06.009
37. Knapp C, Madden V, Wang H, Sloyer P, Shenkman E. Internet use and ehealth literacy of lowincome parents whose children have special health care needs. J Med Internet Res [Internet]. 2011 [cited 2016 Nov 02];13(3):e75. Disponível em: https://www.jmir.org/2011/3/e75/
38. Mendonça APB, Neto AP. Critérios de avaliação da qualidade da informação em sites de saúde: uma proposta. RECIIS - Rev Eletr Comun Inf Inov Saúde [Internet]. 2015 [cited 2016 Oct 28];9(1). Disponível em: https://doi.org/10.29397/reciis.v9i1.930
39. Agree EM, King AC, Castro CM, Wiley A, Borzekowski DL. “It’s Got to Be on This Page”: age and cognitive style in a study of online health information seeking. J Med Internet Res [Internet]. 2015 [cited 2017 Mar 18];17(3):e79. Disponível em: https://www.jmir.org/2015/3/e79/
40. Haznedaroglu E, Mentes A. The Internet versus pediatricians as a source of infant teething information for parents in Turkey. Clinics [Internet]. 2016 [cited 2016 Oct 23];71(8):430-4. Disponível em: https://doi.org/10.6061/clinics/2016(08)04

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Lima, Vanessa Ferreira de; Mazza, Verônica de Azevedo. Necesidades De Información De Las Familias Sobre Salud/Enfermedad De Los Prematuros En Unidad De Terapia Intensiva Neonatal. Texto & Contexto. 2019; 28: 1-7. Disponible en: http://ciberindex.com/c/tc/28006p [acceso: 25/11/2020]
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