Cualidad de vida de los cuidadores principales de pacientes pos-transplante de células-tronco hematopoyéticas

Quality of life of the main caretakers of posthematopoietic stem-cell transplant patients

Qualidade de vida dos cuidadores principais de pacientes pós-transplante de células-tronco hematopoéticas

  • Renata Azevedo Schnepper Hospital de Clínicas (HC). Universidade Federal do Paraná (UFPR) (Curitiba, Paraná, Brasil)
  • Luciana Puchalski Kalinke Universidade Federal do Paraná (UFPR) (Curitiba, Paraná, Brasil)
  • Leila Maria Mansano Sarquis Universidade Federal do Paraná (UFPR) (Curitiba, Paraná, Brasil)
  • Maria de Fátima Mantovani Universidade Federal do Paraná (UFPR) (Curitiba, Paraná, Brasil)
  • Sibeli de Fátima Ferraz Simao Proença Universidade Federal do Paraná (UFPR) (Curitiba, Paraná, Brasil)
Palabras clave: Cualidad de vida, Enfermería oncológica, Transplante de células-tronco hematopoéticas, Cuidadores, Neoplasia
Key-words: Quality of life, Oncologic nursing, Hematopoietic. Stem-cell transplant, Caretaker, Neoplasia
Palavras chave: Qualidade de vida, Enfermagem oncológica, Transplante de células-tronco hematopoéticas, Cuidadores, Neoplasia

Resumen

Abstract

Resumo

Bibliografía

1. El-Jawahri AR, Traeger LN, Kuzmuk K, Eusebio JR, Vandusen HB, Shin JA, et al. Quality of life and mood of patients and family caregivers during hospitalization for hematopoietic stem cell transplantation. Cancer [Internet]. 2015 Mar [cited 2016 Feb 11]; 121(6):951- 9. Available from: http://onlinelibrary.wiley.com/ doi/10.1002/cncr.29149/pdf
2. Bevans M, Sternberg EM. Caregiving burden, stress, and health effects among family caregivers of adult cancer patients. Jama [Internet]. 2012 Jan [cited 2016 Apr 18]; 307(4):398-403. Available from: http://www. ncbi.nlm.nih.gov/pmc/articles/PMC3304539/pdf/ nihms-355747.pdf
3. Toledo MO de, Ballarin MLGS. Qualidade de vida: cuidadores informais de pacientes em tratamento quimioterápico. Rev Ciências Médicas [Internet]. 2013 Jan-Abr [cited 2016 Apr 18]; 22(1):11-22. Available from: http://periodicos.puc-campinas.edu.br/seer/ index.php/cienciasmedicas/article/view/1997/1755
4. Voltarelli JC, Pasquini R, Ortega E, organizadores. Transplante de células-tronco hematopoéticas. São Paulo: Atheneu, 2009.
5. Santos CLT, Sawada NO, Santos JLF. Evaluation of the health-related quality of life of hematopoietic stem cell transplantation patients. Rev Latino-am Enfermagem [Internet]. 2011Nov-Dec [cited 2016 Apr 18]; 19(6):1322-8. Available from: http://www. revistas.usp.br/rlae/article/view/4447/5882
6. Gratao ACM, Vendrúscolo TRP, Talmelli LF da S, Figueiredo LC, Santos JLF, Rodrigues RAP. Burden and the emotional distress in caregivers of elderly individuals. Texto Contexto Enferm [Internet]. 2012 Apr- Jun [cited 2016 Apr 18]; 21(2):3014-12. Available from: http://www.scielo.br/pdf/tce/v21n2/ en_a07v21n2.pdf
7. Martins QCS, Santos VS, Neto DP. Aspects regarding the patient/family and professionals in the context of hematopoietic stem cells transplantation: a reflective analysis. J Nurs UFPE [Internet]. 2013 [cited 2016 Apr 18]; 7(12):6901-6. Available from: http://www.revista. ufpe.br/revistaenfermagem/index.php/revista/ article/view/3321
8. Sales CA, Grossi ACM, Almeida CSL de, Donini e Silva JD, Marcon SS. Oncology nursing care from the perspective of family caregivers in the hospital context. Acta Paul Enferm [Internet]. 2012 [cited 2016 Jan 22]; 25(5):736-42. Available from: http://www. scielo.br/pdf/ape/v25n5/en_14.pdf
9. Andrade AM, Castro EAB, Santos KB, Soares TC. A vida após o transplante de medula óssea: implicações para o cotidiano. Cogitare Enferm [Internet]. 2012 Apr-Jun [cited 2016 Aug 15]; 17(2):290-6. Available from: http://ojs.c3sl.ufpr.br/ojs2/index.php/ cogitare/article/view/27883
10. Escobar-Ciro CL. Perception of the quality of life of family caregivers of adults with cancer. Invest Educ Enfer. [Internet]. 2012 [cited 2016 Jan 19]; 30(3):320-9. Available from: http://www.scielo.org.co/pdf/iee/ v30n3/v30n3a04.pdf
11. Lamino DA, Turrini RNT, Kolkaba K. Cancer patients caregivers comfort. Rev Esc Enferm USP [Internet]. 2014 [cited 2015 Dec 12]; 48(2)274-80. Available from: http://www.scielo.br/pdf/reeusp/v48n2/0080- 6234-reeusp-48-02-278.pdf
12. Jim HS, Quinn GP, Barata A, Cases M, Cessna J, Gonzalez B, et al. Caregivers’ quality of life after blood and marrow transplantation: a qualitative strudy. Bone Marrow Transplant [Internet]. 2014 Sep [cited 106 Feb 22]; 49(9):1234-6. Available from: http:// www.ncbi.nlm.nih.gov/pmc/articles/PMC4313382/ pdf/nihms-657526.pdf
13. Ciconelli RM, Ferraz MB, Santos W, Meinão I, Quaresma MR. Tradução para a língua portuguesa e validação do questionário genérico de avaliação de qualidade de vida SF-36 (BRASIL SF-36). Rev Bras Reumatol [Internet]. 1999 Mai-Jun [cited 2015 Jan 14]; 39(3):143-50. Available from: http:// www.ufjf.br/renato_nunes/files/2014/03/ Valida%C3%A7%C3%A3o-do-Question%C3%A1riode- qualidade-de-Vida-SF-36.pdf
14. Mari JJ, Williams PA. A validity study of a psychiatric screening questionnaire (SRQ-20) in primary care in the city of São Paulo. Br J Psychiatry [Internet]. 1986 Jan [cited 2015 Jan 14]; 148:23-6. Available from: http://bjp. rcpsych.org/content/bjprcpsych/148/1/23.full.pdf
15. Scazufca M. Brazilian Version of the Burden Interview scale for the assessment of burden of care in carers of people with mental illnesses. Rev Bras Psiquiat [Internet]. 2002 [cited 2015 Jan 14]; 24(1):12-7. Available from: http://www.scielo.br/pdf/rbp/ v24n1/11308.pdf
16. Hebert R, Bravo G, Prèville M. Reliability, validity and reference values of the Zarit Burden Interview for assessing informal caregivers of community dwelling older persons with dementia. Can J Aging [Internet]. 2000 [cited 2015 Jan 14]; 19:494-507. Available from: http://dx.doi.org/10.1017/S0714980800012484
17. Luzardo AR, Gorini MIPC, Silva APSS. Características de idosos com doença de Alzheimer e seus cuidadores: uma série de casos em um serviço de neurogeriatria. Texto Contexto Enferm [Internet]. 2006 Dec [cited 2015 Jan 15]; 15(4):587-94. Avalilable from: http://www. scielo.br/pdf/tce/v15n4/v15n4a06.pdf
18. Bussab WO, Moretti, PA. Estatística Básica. 5 ed. São Paulo (SP): Saraiva, 2006.
19. Piolli KC, Medeiros M, Sales CA. Significations of being the caregiver of the companion with cancer: an existential look. Rev Bras Enferm [Internet]. 2016 Jan- Feb [cited 2016 Jun 04]; 69(1):99-105. Available from: http://www.scielo.br/pdf/reben/v69n1/en_0034- 7167-reben-69-01-0110.pdf
20. Cooke L, Grant M, Eldredge D, Maziaiz RT, Nail LM. Informal Caregiving in HCT Patients. Eur J Oncol Nurs [Internet]. 2011 Dec [cited 2016 Jun 03]; 15(5):500- 7. Available from: http://www.ejoncologynursing. com/article/S1462-3889(11)00011-1/pdf
21. Hamilton JG, Wu LM, Austin, JE, Valdimarsdottir H, Basmajian K, Vu A. et al. Economic survivorship stress is associated with poor health related quality of life among distressed survivors of hematopoietic stem cell transplantation. Psychooncology [Internet]. 2013 Apr [cited 2-16 Mar 08]; 22(4):911-21. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/ PMC3648213/pdf/nihms-467228.pdf
22. Cruz LN, Fleck MP de A, Oliveira MR, Camey SA, Hoffmann JF, Bagatiini AM, et al. Health-related quality of life in Brazil: normative data for the SF-36 in a general population sample in the south of the country. Ciênc Saúde Coletiva [Internet]. 2013 [cited 2016 Jan 19]; 18(7):1911-21. Available from: http:// www.scielo.br/pdf/csc/v18n7/06.pdf
23. Choi J, Tate JA, Hoffman LA, Schulz R, Ren D, Donahoe MP, et al. Fatigue in family caregivers of adult intensive care unit survivors. J Pain Symptom Manage [Internet]. 2015 Sep [cited 2015 Nov 12]; 48(3):353-63. Available from: http://www. jpsmjournal.com/article/S0885-3924(13)00666-0/pdf
24. Anjos KF, Boery RNSO, Pereira R. Qualidade de vida de cuidadores de familiares idosos dependentes no domicílio. Texto Contexto Enferm [Internet]. 2014 Jul- Set [cited 2015 Nov 12]; 23(3):600-8. Available from: http://dx.doi.org/10.1590/0104-07072014002230013
25. Oliveira DC, Carvalho GSF, Stella F, Higa CMH, D’Elboux MJ. Qualidade de vida e sobrecarga de trabalho em cuidadores de idosos em seguimento ambulatorial. Texto Contexto Enferm [Internet]. Jun 2011 [cited 2016 Feb 24]; 20(2):234-40. Available from: http://www.scielo.br/pdf/tce/v20n2/a03v20n2.pdf
26. Santo EARE, Gaíva MAM, Espinosa MM, Barbosa DM, Belasco AGS. Cuidando da criança com câncer: avaliação da sobrecarga e qualidade de vida dos cuidadores. Rev Latino-am Enfermagem [Internet]. 2011 Mai-Jun [cited 2016 Jan 28]; 19(3):1-9. Available from: http://www. scielo.br/pdf/rlae/v19n3/pt_10.pdf

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1.
Schnepper, Renata Azevedo; Kalinke, Luciana Puchalski; Sarquis, Leila Maria Mansano; Mantovani, Maria de Fátima; Proença, Sibeli de Fátima Ferraz Simao. Cualidad de vida de los cuidadores principales de pacientes pos-transplante de células-tronco hematopoyéticas. Texto & Contexto. 26 de octubre de 2018; 27(3). Disponible en: http://ciberindex.com/c/tc/27307p [acceso: 14/11/2018]
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