Comunicación y toma de decisiones compartida en la población infantil y adolescente con cáncer

Communication and sharing decision making in childhood and adolescent who suffer cancer

  • Nuria Quirós Jurado Quirós Jurado Universidad de Córdoba. Córdoba, España
  • Pedro E. Ventura Puertos Universidad de Córdoba. Córdoba, España
  • Salma Boulayoune Universidad de Córdoba. Córdoba, España
Palabras clave: Niño, Cáncer, Comunicación, Toma de decisiones
Key-words: Child, Cancer, Communication, Decision Making

Resumen

Abstract

Bibliografía


  1. OMS. Preguntas frecuentes sobre el cáncer infantil [Internet]. WHO. [cited 2017 Mar 13]. Available from: http://www.who.int/cancer/media/news/Childhood_cancer_day/es/

  2. October TW, Hinds PS, Wang J, Dizon ZB, Cheng YI, Roter DL. Parent Satisfaction with Communication Is Associated with Physician’s PatientCentered Communication Patterns during Family Conferences. Pediatr Crit Care Med. 2016;17(6):490–7. Doi: 10.1097/PCC.0000000000000719

  3. Vern-Gross T. Establishing communication within the field of pediatric oncology: a palliative care approach. Curr Probl Cancer. 2011 Dec;35(6):337–50. Doi: 10.1016/j.currproblcancer.2011.10.008

  4. Méndez J. Psicooncología infantil : situación actual y líneas de desarrollo futuras. Rev Psicopatología Psicol Clínica [Internet]. 2005 [Citado 30 Mar 2017];10(1):33–52. Disponible en: http://revistas.uned.es/index.php/RPPC/article/view/9316

  5. Coyne I, Amory A, Kiernan G, Gibson F. Children’s participation in shared decision-making: Children, adolescents, parents and healthcare professionals’ perspectives and experiences. Eur J Oncol Nurs. 2014;18(3):273–80. Doi: 10.1016/j.ejon.2014.01.006.

  6. Davies J, Kelly D, Hannigan B. Autonomy and dependence: a discussion paper on decision-making in teenagers and young adults undergoing cancer treatment. J Adv Nurs. 2015 Sep;71(9):2031–40. Doi: 10.1111/jan.12669.

  7. The Parents’ Ability to Attend to the “Voice of Their Child” With Incurable Cancer During the Palliative Phase (PDF Download Available) [Internet]. ResearchGate. [cited 2017 Mar 20]. Available from: https://www.researchgate.net/publication/274262719_The_Parents’_Abi lity_to_Attend_to_the_Voice_of_Their_Child_With_Incurable_Cancer_Du ring_the_Palliative_Phase

  8. Young B, Ward J, Salmon P, Gravenhorst K, Hill J, Eden T. Parents’ experiences of their children’s presence in discussions with physicians about Leukemia. Pediatrics. 2011 May;127(5):e1230-1238. Doi:10.1542/peds.2010-2402.

  9. Nyborn JA, Olcese M, Nickerson T, Mack JW. “Don’t Try to Cover the Sky with Your Hands”: Parents’ Experiences with Prognosis Communication About Their Children with Advanced Cancer. J Palliat Med. 2016 Apr 26;19(6):626–31. Doi: 10.1089/jpm.2015.0472.

  10. Grant MJ, Booth A. A typology of reviews: an analysis of 14 review types and associated methodologies. Health Inf Libr J. 2009 Jun 1;26(2):91–108. Doi: 10.1111/j.1471-1842.2009.00848.x.

  11. Urrútia G, Bonfill X. Declaración PRISMA: una propuesta para mejorar la publicación de revisiones sistemáticas y metaanálisis. Med Clínica. :507–11. Doi: 10.1016/j.medcli.2010.01.015

  12. Zwaanswijk M, Tates K, Van D, Hoogerbrugge PM, Kamps WA, Beishuizen A, et al. Communicating with child patients in pediatric oncology consultations: A vignette study on child patients’, parents’, and survivors’ communication preferences. Psychooncology. 2011;20(3):269–77. Doi: 10.1002/pon.1721.

  13. Kelly KP, Mowbray C, Pyke-Grimm K, Hinds PS. Identifying a conceptual shift in child and adolescent-reported treatment decision making: “Having a say, as I need at this time.” Pediatr Blood Cancer. 2017;64(4). Doi: 10.1002/pbc.26262.

  14. Citak EA, Toruner EK, Gunes NB. Exploring communication difficulties in pediatric hematology: oncology nurses. Asian Pac J Cancer Prev APJCP [Internet]. 2013 [Citado 20 Mar 2017];14(9):5477–82. Doi: http://dx.doi.org/10.7314/APJCP.2013.14.9.5477

  15. Brand SR, Fasciano K, Mack JW. Communication preferences of pediatric cancer patients: talking about prognosis and their future life. Support Care Cancer. 2017;25(3):769–74. Doi: 10.1007/s00520-0163458-x.

  16. Coyne I, Amory A, Gibson F, Kiernan G. Information-sharing between healthcare professionals, parents and children with cancer: more than a matter of information exchange. Eur J Cancer Care (Engl). 2016 Jan;25(1):141–56. Doi: 10.1111/ecc.12411.

  17. Baker JN, Leek AC, Salas HS, Drotar D, Noll R, Rheingold SR, et al. Suggestions from adolescents, young adults, and parents for improving informed consent in phase 1 pediatric oncology trials. Cancer. 2013;119(23):4154–61. Doi: 10.1002/cncr.28335.

  18. Coyne I, O’Mathúna DP, Gibson F, Shields L, Sheaf G. Interventions for promoting participation in shared decision-making for children with cancer. Cochrane Database Syst Rev. 2013 Jun 6;(6):CD008970. Doi: 10.1002/14651858.CD008970.pub2.

  19. Arabiat DH, Alqaissi NM, Hamdan-Mansour AM. Children’s knowledge of cancer diagnosis and treatment: Jordanian mothers’ perceptions and satisfaction with the process. Int Nurs Rev. 2011;58(4):443–9. Doi: 10.1111/j.1466-7657.2011.00899.x.

  20. Sposito AMP, de Montigny F, Sparapani V de C, Lima RAG de, SilvaRodrigues FM, Pfeifer LI, et al. Puppets as a strategy for communication with Brazilian children with cancer. Nurs Health Sci. 2016 Mar;18(1):30– 7. Doi: 10.1111/nhs.12222.

  21. Adduci A, Jankovic M, Strazzer S, Massimino M, Clerici C, Poggi G. Parent-child communication and psychological adjustment in children with a brain tumor. Pediatr Blood Cancer. 2012 Aug;59(2):290–4. Doi: 10.1002/pbc.24165.

  22. Korsvold L, Mellblom AV, Finset A, Ruud E, Lie HC. A content analysis of emotional concerns expressed at the time of receiving a cancer diagnosis: An observational study of consultations with adolescent and young adult patients and their family members. Eur J Oncol Nurs Off J Eur Oncol Nurs Soc. 2017 Feb;26:1–8. Doi: 10.1016/j.ejon.2016.10.005.

  23. Feraco AM, Brand SR, Mack JW, Kesselheim JC, Block SD, Wolfe J. Communication Skills Training in Pediatric Oncology: Moving Beyond Role Modeling. Pediatr Blood Cancer. 2016;63(6):966–72. Doi: 10.1002/pbc.25918.

  24. Kilicarslan-Toruner E, Akgun-Citak E. Information-seeking behaviours and decision-making process of parents of children with cancer. Eur J Oncol Nurs. 2013;17(2):176–83. Doi: 10.1016/j.ejon.2012.03.001.

  25. Van L, Van DG, Vrakking AM, Van DH, Pieters R, Van DH-E. End-oflife decisions in pediatric cancer patients. J Palliat Med. 2015;18(8):697– 702. Doi: 10.1089/jpm.2015.29000.rbvl.

  26. Day E, Jones L, Langner R, Bluebond-Langner M. Current understanding of decision-making in adolescents with cancer: A narrative systematic review. Palliat Med. 2016;30(10):920–34. Doi: 10.1177/0269216316648072.

  27. Lyon ME, Jacobs S, Briggs L, Cheng YI, Wang J. A longitudinal, randomized, controlled trial of advance care planning for teens with cancer: Anxiety, depression, quality of life, advance directives, spirituality. J Adolesc Health. 2014;54(6):710–7. Doi: 10.1016/j.jadohealth.2013.10.206.

  28. Kelly KP, Pyke-Grimm K, Stewart JL, Hinds PS. Hypothesis generation for childhood cancer communication research: results of a secondary analysis. West J Nurs Res. 2014 Apr;36(4):512–33. Doi: 10.1177/0193945913507487.

  29. Valdez-Martinez E, Noyes J, Bedolla M. When to stop? Decisionmaking when children’s cancer treatment is no longer curative: a mixedmethod systematic review. BMC Pediatr. 2014 May 13;14:124. Doi: 10.1186/1471-2431-14-124.

  30. Wiering BM, Noordman J, Tates K, Zwaanswijk M, Elwyn G, De B, et al. Sharing decisions during diagnostic consultations; an observational study in pediatric oncology. Patient Educ Couns. 2016;99(1):61–7. Doi: 10.1016/j.pec.2015.07.026.

  31. Essig S, Steiner C, Kuehni CE, Weber H, Kiss A. Improving Communication in Adolescent Cancer Care: A Multiperspective Study. Pediatr Blood Cancer. 2016;63(8):1423–30. Doi:10.1002/pbc.26012.

  32. Luis CJ, Arce Sánchez, María del Carmen, Carballal Balsa, María del Consuelo. Técnicas de comunicación y relación de ayuda en ciencias de la salud. 2a. Barcelona: ELSEVIER; 2010. 304 p.

  33. Granados Gámez, Genoveva. Aplicación de las ciencias psicosociales al ámbito del cuidar. Barcelona: ELSEVIER; 2014. 180 p. 34. Rishel CJ. Conceptual framework for the study of parental end-of-life decision making in pediatric blood and marrow transplantation. Oncol Nurs Forum. 2010 Mar;37(2):184–90. Doi: 10.1188/10.ONF.184-190.

  34. Ringnér A, Jansson L, Graneheim UH. Parental experiences of information within pediatric oncology. J Pediatr Oncol Nurs Off J Assoc Pediatr Oncol Nurses. 2011 Aug;28(4):244–51. Doi: 10.1177/1043454211409587.

  35. Patenaude AF, Pelletier W, Bingen K. Communication, Documentation, and Training Standards in Pediatric Psychosocial Oncology. Pediatr Blood Cancer. 2015;62:S870–95. Doi:10.1002/pbc.25725.

  36. Martínez-Férez IM, Isabel-Gómez, R, Molina-Linde, JM, Molina-López T. Estrategias de comunicación con niños y adolescentes en el ámbito hospitalario o de atención primaria [Internet]. Sevilla: Consejería de igualdad, salud y políticas sociales; 2014 Sep p. 38. Available from: http://www.observatoriodelainfancia.es/oia/esp/descargar.aspx?id=477 9&tipo=documento

  37. Sung L, Regier DA. Decision making in pediatric oncology: Evaluation and incorporation of patient and parent preferences. Pediatr Blood Cancer. 2013;60(4):558–63. Doi: 10.1002/pbc.24450.

  38. Weaver MS, Baker JN, Gattuso JS, Gibson DV, Sykes AD, Hinds PS. Adolescents’ preferences for treatment decisional involvement during their cancer. Cancer. 2015;121(24):4416–24. Doi: 10.1002/cncr.29663.

  39. Mack JW, Wolfe J, Cook EF, Grier HE, Cleary PD, Weeks JC. Parents’ roles in decision making for children with cancer in the first year of cancer treatment. J Clin Oncol Off J Am Soc Clin Oncol. 2011 May 20;29(15):2085–90. Doi: 10.1200/JCO.2010.32.0507.

Novedades
Estadísticas
Cómo citar
1.
Quirós Jurado, Nuria Quirós Jurado; Ventura Puertos, Pedro E.; Boulayoune, Salma. Comunicación y toma de decisiones compartida en la población infantil y adolescente con cáncer. Ética De Los Cuidados. 30 de julio de 2018; 11. Disponible en: http://ciberindex.com/c/et/e11873 [acceso: 21/09/2018]
Sección
Revisiones
Comentarios

DEJA TU COMENTARIO     VER 0 COMENTARIOS

Normas y uso de comentarios


Hay un total de 0 comentarios


INTRODUCIR NUEVO COMENTARIO

Para enviar un comentario, rellene los campos situados debajo. Recuerde que es obligatorio indicar un nombre y un email para enviar su comentario (el email no sera visible en el comentario).

Nombre:
e-mail:
Comentario: